What’s multiple sclerosis (MS)? It’s a chronic autoimmune neurological disease of the central nervous system and it affects people worldwide — 2.5 million people to be exact, according to a study on the Psychopathology in Multiple Sclerosis. Based on findings from the Multiple Sclerosis Journal, locally, 767 Malaysians have MS so far.
MS is where the immune system damages the outer coating of the brain and spinal cord, and this disrupts how the nerves function and communicate with each other. Due to the lack of awareness on this disease though, a lot of cases don’t get diagnosed.
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We met! I cannot express the gratitude I have towards the kindness and hard work of #barbaraalinker 💛. She is the woman behind the invention, design and build of this wonderful #walkingbike. I have been without my @the_alinker_world while taking care of things back home, seeing family and healing and thought I could manage with my cane. It became untenable and painful to my joints. So she found me. ❤️ she gave me this bike. And I took off. So many people have already stopped me to ask about it. Good thing I am a chatterbox and so happy with this #mobilityaid, I feel like a model at a car show. Gonna nap. And look forward to the days ahead with faster , smoother , increased mobility in a walking city. Thank you thank you @the_alinker_world #gamechanger #reactivateyourbrain #activateyourbrain #kindness #brilliance. #life 🙌 #thealinker
In 2018, Selma Blair was diagnosed with MS and took her experience with the disease to the public. She posts about her struggles on Instagram, sharing her fight with the disease often with a positive outlook on it.
Here’s the thing, women are twice more as likely to have MS compared to men, and usually people between the ages of 20 and 50 are diagnosed. Symptoms of MS tend to come and go, but for most people diagnosed with it, the disease gets progressive. It’ll become worse over time with fewer to no recovery periods in between (sigh, what a bummer).
World MS Day
Because of this, World MS Day is held on 30th May every year to raise awareness on MS. The symptoms can be invisible and so those with MS might not even be aware of how it affects their daily lives.
It’s also partly the reason why a lot of people don’t know they have it.
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Yesterday on my @the_alinker_world ⭐️ it was good day. I am now resting because I find that is the price of going out. So many people have responded to this innovative #walking bike and didn’t realize it even existed. I saw one at doctor this winter. A friend loaned me one and then @jamielynnsigler lovingly gave me hers. Insurance doesn’t cover so they are costly. Worth it, #reactivateyourbrain, but the conversation from #sickcare to #healthcare needs to happen to make these a game changer in the lives of so many people. Barbara is #thealinker has created an innovative #mobilityaid and I am so proud to know her now. As soon as foggy brain lifts or someone over helps me, we will do a giveaway. Someone ( or two) could get a life changing, foldable walking assist. Makes me happy. Stay tuned 💛
From Selma’s Perspective — Dealing with MS
Selma’s been battling the disease headstrong and recently got a new mobility bike to get herself around. In a Good Morning America interview, Selma talked about how she took the news of her diagnosis, saying that she cried as soon as she found out.
When posting about the realness of having MS, Selma always keeps it light on her Insta. Like this post (below) where she shares her literal struggle of putting make-up on — all because of a “lack of fine motor skills,” she says. It depicts the reality of having Multiple Sclerosis, an ongoing nervous system illness, but also shows how optimistic Selma is about the difficult situation.
symptoms of MS?
According to experts, it’s almost impossible to find the root cause of MS. Symptoms? Well, it varies for each person. Most of the time, it’s having a vision loss or double vision, tiredness, having trouble sleeping, numbness, nerve pain and just generally feeling weak.
Although the symptoms can subside over time, patients could also experience a relapse and the symptoms can accumulate and get worse.
Some ways to manage it
While a cure is yet to be found for MS, you can still manage it with proper medical care. With a consultation with a doctor, steroids and certain drugs can be used to relieve symptoms and reduce inflammation in the body.
Also keeping up a healthy lifestyle will help ease symptoms a little. Try some regular exercise and maintain a balanced diet to manage symptoms. This’ll all help in dealing with the daily struggles of MS and having a positive mindset throughout the ups and downs.